Websites on Fibrodysplasia Ossificans Progressiva:
IFOPA - International Fibrodysplasia Ossificans Progressiva Association Support group for families. Information about the condition, treatment, and research efforts.
McKay Orthopaedic Research Laboratory Summaries of current research projects at the University of Pennsylvania.
SFGate San Francisco Chronicle article describes the disease, includes anecdotes about the lives of several patients. (May 31, 2005)
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