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Websites on Fibrodysplasia Ossificans Progressiva:
IFOPA - International Fibrodysplasia Ossificans Progressiva Association
Support group for families. Information about the condition, treatment, and research efforts.
McKay Orthopaedic Research Laboratory
Summaries of current research projects at the University of Pennsylvania.
SFGate
San Francisco Chronicle article describes the disease, includes anecdotes about the lives of several patients. (May 31, 2005)


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