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Categories related to Marfan Syndrome : Connective Tissue : Musculoskeletal Disorders : Conditions and Diseases : Health:
Health: Conditions and Diseases: Musculoskeletal Disorders: Connective Tissue: Ehlers-Danlos Syndrome (28)
Health: Conditions and Diseases: Musculoskeletal Disorders: Connective Tissue: Hypermobility Syndrome (13)


Websites on Marfan Syndrome:
American Heart Association - Marfan's Syndrome
Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.
Canadian Marfan Association
Information, articles, events, a patient survey, and products. Also includes an article on Pharaoh Akhenaten who was believe to have the disease.
A Diary about Marfan's
Marfan's patients diary of the diseases events in her life. Includes a list of links.
International Federation of Marfan Syndrome Organizations
A global information center providing links to Organizations around the world.
Life and Issues of Marfan's Syndrome
Personal site by which describes the pathology and gives a bit of advice.
Living With Marfans
This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
Marfan Association UK
The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.
Marfan Support and Information
Support group in New South Wales, Australia.
Marfan Syndrome
A Question-Answer format page of information.
Marfan Syndrome
A Question-Answer format page of information.
Marfan Syndrome
A Question-Answer format page of information.
Marfan Syndrome
A Question-Answer format page of information.
Marfan Syndrome: Does Diet Play a Role
Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
Marfan-List
Information about an e-mail mailing list. Also includes links to other online support groups.
Marfans Research Foundation
Irish charity with information on fund raising activities and the condition.
MFS Type 1 Fibrillin Gene
Major resources listed as well as genetic information.
The Mystery of Akhenaten: Genetics or Aesthetics?
A history of the pharaoh along with theories applied to what he may have had, including Marfan's.
National Marfan Foundation
Providing accurate and timely information about the disorder to patients, family members and physicians.
Polish Marfan Association
General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations.
Questions and Answers about Marfan Syndrome
From the National Institutes of Health.
Slovak Marfan Association
The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
South African Marfan Syndrome Organisation
Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.
Swedish Marfan Association
Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association.
Univ. of Washington - Marfan Syndrome
What the disease is and includes the impacts on daily life.


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